Neurofibromatosis Type 1

Life Insurance with Neurofibromatosis Type 1


Life Insurance can be available for those with Neurofibromatosis Type 1.

However, those with more severe symptoms and/or other complications or who are older may be declined by standard insurers.

The condition will impact the overall availability of cover. Life Insurance premiums are going to be higher for many, if an underwriter can be found.

The following guidance is aimed at those who have been diagnosed with Neurofibromatosis Type 1 only. (review details for Type 2 here)


Key Issues for Neurofibromatosis Type 1

The impact of Neurofibromatosis Type 1 will depend on your age and severity: 

If you have not already been declined for life cover, you could consider approaching mainstream insurers first.

Pulse Insurance specialise and may be able to find cover for those with Neurofibromatosis Type 1 and other conditions, when other insurers decline. But, sometimes an underwriter willing to provide cover we may find not available despite our best efforts.

The main aspects affecting the availability and cost of Life Insurance for those with Neurofibromatosis Type 1 are: –

  • Other Health conditions e.g.
    • High Blood Pressure
    • Tumours
    • Bone abnormalities

  • Lifestyle
    • Smoking
    • Alcohol consumption
    • Over-eating / obesity
    • Exercise & fitness

It is usual that we will require a Medical Report before cover can be issued. We will discuss this with you when you enquire.


If you need a specialist underwriter 

Pulse specialise in taking your Neurofibromatosis Type 1 and any other specific conditions and needs into account and finding you Life Insurance cover, if it is available.  

We use our knowledge and experience to find a solution when other Life Insurers have declined to quote.


Why Pulse Insurance?

  • Pulse Insurance have been focused on finding unusual cover since 1998
  • We strive to offer a caring and sensitive service
  • We are knowledgeable insurance professionals who work as a team
  • We provide a personal service to guide you through
  • If we cannot help, it will not be for the want of trying or know-how

While finding cover for everyone is not always possible and the premium will be higher to reflect increased risk, we like to think we are good at helping people find the cover they need.

In most cases, we can offer indicative premiums and/or sense of if cover may be available or not early on; so, you can decide to proceed or not.


Being Transparent

It is always important to declare your Neurofibromatosis Type 1 and any other medical conditions completely.


Your Personal & Medical Details

Everything you disclose about your Neurofibromatosis Type 1 to any life insurer or life agent should be treated with sensitivity and appropriate levels of privacy.


Requirements for more information

While our initial enquiry may not gather enough information to provide an indication of cost, our insurers may ask for more in depth information regarding your Neurofibromatosis Type 1 and/or any other conditions. Sometimes the details you can provide may allow them to reduce the premium they seek.

As you have a medical condition, it is possible that underwriters will need to seek a Doctor’s report or for you to undergo medical examinations, blood tests or other tests that will confirm your health to allow them to quote an accurate premium and confirm cover details. The costs involved in obtaining the medical information are usually paid by the underwriter, but if not, you will be informed before they are requested.

Pulse will never sell your details to anyone. We will use your details to provide the service you have asked for according to the permissions you grant us– read our Privacy and Data Protection policy in full.


Medical Reports

If you have any recent or relevant medical reports, these can enable underwriters to provide a more accurate indication. 
Please send these either to [email protected] or post them to us
n.b. Do not worry if you don’t have any medical reports as they are not usually needed to give an indication of cover / cost.
It may be necessary anyway for separate specific medical reports to be sought if you decide to proceed with an application.
If you have any queries, please give a member of the team a call on 01280 841430.


Additional Covers

Pulse may be able to offer covers beyond everyday Life Insurance to give you the peace of mind and protection you desire.

The reasons you may need life cover may be simple or complex, but having the right cover brings peace of mind for you and your family.

Make an enquiry